Many family has wondered how Amanda has been doing. She is currently off of the steroid they had put her on along with a few other things that she is done with now. For now she is only on the Crohn's medication 6MP. This past week she has had some pain in the esophagus area again which she has not had for a while now. We try to adjust her diet and just trying to figure out what may cause it to act up. She continues to get blood work done every 2 weeks to check her inflammatory markers and to make sure her liver is processing the medication correctly. Her life has changed in the fact that she just can not go out and eat whatever every other teenager is eating, she is tired more often and needs to listen to her body and rest when she feels that way. Her immune system is very low right now from the steroid. It wiped out the good bacteria and the bad out of her body so now the body has to rebuild. Food and nutrients are very important for her overall health and strength. This could be a challenge since school just started and many kids get sick and will be around her. But all in all, she makes the best of each day and it has not really stopped her from doing all the things she loves to do. She has an amazing heart! We continue to pray for remission and for God to bring the right people into our lives that may be of some help and or support!
she loves to be my little model and help me practice my fun with photography!!
IF any one reading this blog struggles with autoimmune this is a great book and a must have!!!